Internet Communities
After the presentation on "Community Building Online and Implications for Health," I began to think back to previous courses and discussions on social capital/networks and the affect of social resources and health.
Studies have shown that individuals with strong social networks have better chances of recovery and those rich in social capital can cope with daily inconveniences, such as those faced by diabetics.
Support helps people with diabetes feel less isolated and more confident about self management. Traditionally, support occurred through face-to-face medical care, education programs, and support groups. Internet technology has made it possible to continue this tradition of supportive interaction combined with information and education in a way that transcends the clinic environment. The Joslin Diabetes Center's Internet discussion boards were designed to be a technological extension of traditional support groups for chronic illness.
The Internet continues to develop as a place where people gather to share experiences, exchange information, and find emotional support. The increasing number of people who communicate over the Internet via mailing lists, news and discussion groups, or live chat rooms emphasizes that people find the Internet an effective way to communicate, especially about health-related issues.
Dr. John F. Zrebiec from Harvard Medical School and the Behavioral and Mental Health Unit condicted a study that established and evaluated a Web-based educational and emotional resource for patients with diabetes and their family members.
This study demonstrated that Internet communities are beneficial for individuals with diabetes and their family members. There seems to be a need or desire to discuss with peers similar problems, learn coping strategies, and maintain hope. In summary, a professionally moderated health-related discussion group offering a combination of information and support is an effective strategy for engaging people about management of their diabetes.
Many questions still need to be explored. Are these results clinically significant?Can they be maintained over time through online support? Are individuals seeking help online different from those seeking help in person? Are virtual relationships more or less valuable than face-to-face meetings? Can virtual communities replace or complement face-to-face support groups? Does participation in these Internet communities change the dynamics of the provider patient relationship? Are these online health care services compatible with existing healthcare delivery?
As many public health findings, further research is often needed to answer the remaining questions. Without a doubt I believe the Internet can only benefit a management/support program. I only wonder, if the Internet becomes accessible to all, will there still be face-to-face social support systems and if so will they be as rich as before the Internet?
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